A Fatal Family Disease & the Flip of a Coin
Rachelle Dixon shares her story of growing up around “the family disease,” eventually diagnosed as HSAN1E — a rare, hereditary, degenerative neurological condition that claimed the lives of her mother and two of her siblings. Rachelle is the President and Co-Founder of the HSAN1E Society, an advocate for rare diseases, and a frequent speaker on caregiving for individuals with rare diseases.
NORD (National Organization of Rare Diseases)
HSAN1E Society on Facebook
Find Rachelle on Twitter (@RachelleM_Dixon) and LinkedIn
Listen on Spotify, iTunes, SoundCloud, Google Play, or Online.
Do you need genetic counseling?
Book a session with a genetic counselor on our network.
Would you like to support Patient Stories?
Donate $1 to Patient Stories. Your support means the world.