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A Fatal Family Disease & the Flip of a Coin

Rachelle Dixon shares her story of growing up around “the family disease,” eventually diagnosed as HSAN1E — a rare, hereditary, degenerative neurological condition that claimed the lives of her mother and two of her siblings. Rachelle is the President and Co-Founder of the HSAN1E Society, an advocate for rare diseases, and a frequent speaker on caregiving for individuals with rare diseases.

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