Can 23andMe Have it Both Ways?
Like millions of other Americans, Dorothy Pomerantz took a 23andme test on a whim. And like many other Americans, she received some results back that came as a surprise. Just a few weeks ago, she wrote an article in STAT News, sharing her experience of receiving BRCA positive results through 23andMe.
Pomerantz, Dorothy. ”23andMe had devastating news about my health. I wish a person had delivered it.” STAT News. August 8, 2019.
Robbins, R., Garde, D. Feurstein, A. ”A writer shared her story about getting frightening genetic results online. The response was surprising.” August 19, 2019.
Follow Dorothy on Twitter: @DorothyPWrites
Information about the (lack of) regulation of genetic tests from the NIH National Human Genome Research Institute
Riley J and Stoll, K. Blurred Lines: Comparing Direct-to-Consumer and Clinical Testing. Clinical Lab News, AACC. July 1, 2019.
Kilbride, MK. Domchek, SM. Bradbury, Angela R. How Should Patients and Providers Interpret the US Food and Drug Administration’s Regulatory Language for Direct-to-Consumer Genetic Tests? Journal of Clinical Oncology. June 7, 2019.
Levenson, Deborah. The Case for Population-Based BRCA1 and BRCA2 Testing. Clinical Lab News, AACC. May 1, 2016.
King, MC, Evy-Lahad, E. Lahad, A. Population-Based Screening for BRCA1 and BRCA2. 2014 Lasker Award. JAMA. September 17, 2014.
Related Grey Genetics News Corner blog posts:
What Can 23andme tell you about your breast cancer risk?
NCCN Expands Genetic Testing Criteria to Include More Women with Breast Cancer
Family history of breast cancer matters—even and especially when genetic test results are negative.
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