Hypermobile Ehlers-Danlos Syndrome
Alexandra Parker is a senior student at Sarah Lawrence College. Alex describes her journey to a diagnosis of Hypermobile Ehlers-Danlos Syndrome and the skepticism that she faced from medical professionals. She had to adjust emotionally and physically following her diagnosis with respect to sports. Self-advocacy has become an important part of Alex’s day to day. She discusses the importance of “being believed” in a medical setting and encourages others to seek out different medical professional expertise when needed.
Alex was interviewed by guest host Kelsey Crocker, a second year genetic counseling student.
Do you need genetic counseling?
Book a session with a genetic counselor on our network.
Would you like to support Patient Stories?
Donate $1 to Patient Stories. Your support means the world.