Making Sense of a Senseless Death
The first genetic counselor to work within a Medical Examiner’s Office, Nori Williams, MS, CGC talks about how she works with families after the loss of a loved one from Sudden Unexplained Death that turns out to have an underlying cardiogenetic cause. She shares stories of grief, resiliency and hope from families she has worked with, helping them to understand what their loved one’s genetic testing results mean for other family members.
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Information on GINA (Genetic Information Non-Discrimination Act)
Related pieces by Darlena:
“I have the scary cancer mutation. When should I have my breasts removed?” Washington Post. March 18, 2018
“Breast Cancer and the Mom-God Fantasy”
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