Sickle Cell Disease: Invisible and Unpredictable

Mary Adeturinmo is a 25-year-old University graduate who studied Architecture. She also has Sickle Cell Disease. Due to health challenges, she has spent a lot of time in recovery as well as promoting and raising awareness for Sickle Cell Disease. She is part of the B Positive Choir which raises awareness about the importance of blood donations as well as Sickle Cell Disease. The B Positive Choir was a finalist on Britain’s Got Talent which helped spread their message to a wider audience. Mary also has a YouTube channel where she speaks on different issues she faces with this genetically inherited condition.

Listen on Spotify, iTunes, SoundCloud, Google Play, or Online. 

Story Reference Points

Growing up with Sickle Cell Disease @ 6:48 
Living with Sickle Cell Disease at University outside of London @ 12:14
Living with Sickle Cell Disease and chronic pain as a young adult @ 20:32
Joining the B Positive Choir and encouraging blood donations @ 29:34
New Standards for Clinical Care of Adults with Sickle Cell Disease in the UK @ 38:16
The value of collaborative, empathic care @ 43:53
Social challenges of living with an invisible condition @ 47:58
Sickle Cell and Social Media @ 54:06
Knowing your carrier status and dating with Sickle Cell Disease @ 1:04

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