Sickle Cell Disease: Invisible and Unpredictable
Mary Adeturinmo is a 25-year-old University graduate who studied Architecture. She also has Sickle Cell Disease. Due to health challenges, she has spent a lot of time in recovery as well as promoting and raising awareness for Sickle Cell Disease. She is part of the B Positive Choir which raises awareness about the importance of blood donations as well as Sickle Cell Disease. The B Positive Choir was a finalist on Britain’s Got Talent which helped spread their message to a wider audience. Mary also has a YouTube channel where she speaks on different issues she faces with this genetically inherited condition.
Connect
The B Positive Choir on Britain’s Got Talent!
Mary on Instagram: @professionalpatient25
Mary on Twitter: @ProfeshPatient
Mary’s YouTube Channel
Red Cells R Us Facebook Group
UK Resources:
Sickle Cell Society
NHS Blood Donation
US Resources:
Sickle Cell Disease Association of America
Find a place to donate blood near you in the U.S.!
Listen on Spotify, iTunes, SoundCloud, Google Play, or Online.
Story Reference Points
Growing up with Sickle Cell Disease @ 6:48
Living with Sickle Cell Disease at University outside of London @ 12:14
Living with Sickle Cell Disease and chronic pain as a young adult @ 20:32
Joining the B Positive Choir and encouraging blood donations @ 29:34
New Standards for Clinical Care of Adults with Sickle Cell Disease in the UK @ 38:16
The value of collaborative, empathic care @ 43:53
Social challenges of living with an invisible condition @ 47:58
Sickle Cell and Social Media @ 54:06
Knowing your carrier status and dating with Sickle Cell Disease @ 1:04
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