Talking about Prader-Willi syndrome with the host of Walking with Freya
As a newborn, Anne Fricke’s second daughter Freya had trouble nursing, slept really soundly, and had hypotonia (low muscle tone). At three and a half months of age, Freya was diagnosed with Prader-Willi syndrome. Anne shares her family’s experience with Freya’s initial diagnosis, how she found support within the Prader-Willi community, and what their challenges are now that Freya is 8 years old. Anne also shares how she has used writing and poetry to help process her feelings and how this led her to start her podcast, Walking With Freya.
Connect
Purchase the writing journal Anne created: There Is Joy To Be Found Here; a writing journal for parents of children with special needs
Follow Anne’s podcast Walking with Freya on Social Media:
Listen on Spotify, iTunes, Google Play, or Anchor.
Do you need genetic counseling?
Book a session with a genetic counselor on our network.
Would you like to support Patient Stories?
Donate $1 to Patient Stories. Your support means the world.